Search: For - national policy for rare diseases

3 results found

Rare Diseases: Justice Delayed, Treatment Denied
Nov 12, 2025

Rare Diseases: Justice Delayed, Treatment Denied

As appeals progress slowly, rare-disease patients face therapy breaks and irreversible harm, showing how legal timelines can fail clinical needs.

वास्तव विरुद्ध अपेक्षा : सरकारचे दुर्मिळ आजार पोर्टल (Rare Disease Portal) अपयशी का ठरतेय?
Oct 03, 2025

वास्तव विरुद्ध अपेक्षा : सरकारचे दुर्मिळ आजार पोर्टल (Rare Disease Portal) अपयशी का ठरतेय?

सरकारी पोर्टलला दुर्मिळ आजारांसाठी निधी उभारण्यात अधिक

Need vs Reality: Why Government's Rare-Disease Portal Lags Behind
Sep 05, 2025

Need vs Reality: Why Government's Rare-Disease Portal Lags Behind

The government platform has the legitimacy to lead rare-disease funding, but without improving usability and engagement, it will struggle to compete w